Objectif
Very preterm birth is a principal determinant of motor and cognitive impairment in later life. About 50 000 infants in the EU survive very preterm birth annually and are at much higher risk of cerebral palsy, visual and auditory deficits, impaired cognitive ability, psychiatric disorders and behavioural problems than infants born at term. However, the long term prognosis at initial discharge from hospital for each individual infant is unknown. Follow-up screening and prevention programmes aim to identify health problems early, enable interventions to improve outcome and to allow optimal management of health care. Despite the recognised importance of these programmes, little is known about their actual application and impact. These programmes consume significant resources because of the multidisciplinary staff required for clinical and developmental assessments and interventions, the coordination required to maintain contact with children after discharge and the time input from families.
This project uses a unique resource – the EPICE cohort of 6675 babies born before 32 weeks of gestational age and surviving to discharge home in 18 geographically diverse regions in 2011/2012 – to assess the impact of these screening programmes on health, care and quality of life for very preterm infants and their families as well as on coverage, ability to meet needs, health equity and costs at the population-level. It will also generate new knowledge about assessment tools and methods. Four inter-related studies will be carried out in 11 EU countries by a multi-disciplinary consortium of clinicians (in obstetrics, paediatrics, and child development), researchers (in epidemiology, health services research and health economics) and a user organisation. Partners have the expertise to implement this project and the national and international renown to translate its result into better programmes and policies.
Champ scientifique
Programme(s)
Régime de financement
RIA - Research and Innovation actionCoordinateur
75654 Paris
France
Voir sur la carte
Participants (14)
LE1 7RH Leicester
Voir sur la carte
35037 Marburg
Voir sur la carte
6525 XZ Nijmegen
Voir sur la carte
Participation terminée
00173 ROMA
Voir sur la carte
61-701 Poznan
Voir sur la carte
2000 Antwerpen
Voir sur la carte
4099-002 Porto
Voir sur la carte
3400 Hillerod
Voir sur la carte
17177 Stockholm
Voir sur la carte
Entité juridique autre qu’un sous-traitant qui est affiliée ou juridiquement liée à un participant. L’entité réalise des travaux dans les conditions prévues par la convention de subvention, fournit des biens ou des services pour l’action, mais n’a pas signé la convention de subvention. Le tiers respecte les règles applicables au participant qui lui est lié dans le cadre de la convention de subvention en ce qui concerne l’éligibilité des coûts et le contrôle des dépenses.
104 22 Stockholm
Voir sur la carte
51005 Tartu
Voir sur la carte
00165 Roma
Voir sur la carte
CV4 8UW COVENTRY
Voir sur la carte
81379 Munchen
Voir sur la carte