BETTER TREATMENTS FOR BREATHLESSNESS IN PALLIATIVE AND END OF LIFE CARE

Livrables

Launch project website
Twitter and Facebook account, open part project website set up
Press launch of project
Project newsletter 4
Project newsletter 6
Project newsletter 3
Dissemination to ensure exploitation by Position Statement, PCF and International Conferences
Project newsletter 5
Project newsletter 2

Project Newsletter

Project newsletter 1

Project newsletters

Final conference
Mandated deliverable 1. First study subject approvals package’. Protocol registered, ethical approval in one centre

First report of dissemination, impact and exploitation activity (posts, publications, engagement etc)
Materials for guideline developed, policy brief
Finalised data mangement plan, protocol and questionnaire for survey; set up webpage

example

Paper on cost-effectiveness, wider costs for submission to journal
Final report on project findings
Second report of dissemination, impact and exploitation activity (posts, publications, engagement etc)

Second report of dissemination impact and exploitation activity posts publications engagement etc

Summary of Evidence
Paper on survey for submission to peer-reviewed journal
Publication of protocol and study plans
Full integrated plan for main trial analysis, including integration of qualitative and health economic data, submit for publication

Full integrated plan for main trial analysis including integration of qualitative and health economic data submit for publication

Informed consent forms and information sheets

When submitting the applications for scrutiny to the local/national ethical boards/bodies for authorization, detailed information will be provided on the informed consent procedures that will be implemented. Copies of examples of Informed Consent Forms and Information Sheets will be included. There will be language understandable to the participants. Participants will have the right: -To know that participation is voluntary; - To ask questions and receive understandable answers before making a decision; - To know the degree of risk and burden involved in participation; - To know who will benefit from participation; - To withdraw themselves and data from the project at any time; - To know of any potential commercial exploitation of the research Project related templates of the informed consent forms and information sheets will be kept on file and submitted upon request

Third report of dissemination, impact and exploitation activity (posts, publications, engagement etc)

Third report of dissemination impact and exploitation activity posts publications engagement etc

Clinical Report

Publications

Management of chronic breathlessness: a multinational survey of respiratory medicine and palliative care doctors

Auteurs: Krajnik M, Hepgul N, Wilcock A, Jassem E, Bandurski T, Tanzi S, Simon ST, Higginson IJ, Jolley CJ
Publié dans: European Respiratory Journal, 2020
Éditeur: European Respiratory Society
DOI: 10.1183/13993003.congress-2020.5182

Non-pharmacological approaches for the management of chronic breathlessness in advanced chronic obstructive pulmonary disease, interstitial lung disease and lung cancer: a survey of respiratory and palliative care physicians

Auteurs: Krajnik M, Hepgul N, Wilcock A, Jassem E, Higginson IJ & Jolley CJ on behalf of the BETTER–B consortium.
Publié dans: Palliative Medicine, 2020
Éditeur: SAGE Publications
DOI: 10.1177/0269216320958098

Do guidelines influence breathlessness management in advanced lung diseases? A multinational survey of respiratory medicine and palliative care physicians.

Auteurs: Krajnik M, Hepgul N, Wilcock A, Jassem E, Bandurski T, Tanzi S, Simon ST, Higginson IJ, Jolley CJ; BETTER-B research consortium.
Publié dans: BMC Pulmonary Medicine, 2022, ISSN 1471-2466
Éditeur: BioMed Central
DOI: 10.1186/s12890-022-01835-0

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Publications

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