The results of the theoretical and empirical research informed development of information material for patients, carers and health professionals. These follow recognised guidelines, aiming to be concise, with a structured design, appropriate illustration and non-alarmist, non-patronising language.
Topics are grouped under the broad headings of:
Learning about your illness/What carers need to know
Getting on with life
Asking the right questions to the right people
Where to get more information
Issues of relevance to carers
Information for professionals
Drafts of the 42 infosheets, each addressing a particular topic, were developed in English, piloted with experts and users throughout Europe and modified in the light of their comments. Once satisfactory versions had been produced, they were translated into 6 other languages, with appropriate modifications to address national and cultural differences.
The material is designed to support and reinforce what is discussed in face-to-face contacts between users and professionals and is available in traditional paper copy, electronic format and via the Internet.