Deliverables
Functional requirement analysis report of Use Case 2
Expected users' interactions
Expected users’ interactions
Framework of modular contract clauses for HRICsModular approach of clauses accompanied by a general guideline document that explains the different modules and their application
Functional requirement analysis report of Use Case 1Final Strategic Agenda for the creation of a European Health Research and Innovation Cloud
Analysis of existing orchestration mechanisms for distributed computational analyses including a general overview to facilitate new developments
Validation of proposed solutions and gap analysis
Guidelines to establish sustainable computational infrastructures for the future HRIC ecosystem
Guideline on ELSI compliant governance models
A set of Guidelines for an ELSI compliant implementation of different HRIC governance approaches which will be aligned with the relevant initiatives and projects identified in task 21 and reviewed by the data protection authorities involved in task 24
Report on the usage and auditing data hubs indicators and proposal of an incentive systemSpecifications for the FAIR data portal
First draft on legal framework for technical safeguards with a focus on cloud usage
Overview of GDPRspecific considerations privacy by design and requirements to support the selection of specifications necessary for a future cloud environment
Recommendations for integration in HealthyCloud, including an analysis of data hub patterns of governanceRecommendations for integration in HealthyCloud including an analysis of data hub patterns of governance
Landscape analysis using a health related-data catalogue matrixReference guidelines for the establishment of an ethically sound and legal compliant health data research ecosystem
Report on current discoverability solutions and FAIR adoption level
Guidelines to standardise metadata templates and assessment of FAIRness maturity levels
Landscape analysis of FAIRness levels of health-related data using catalogue matrix
Landscape analysis of FAIRness levels of healthrelated data using catalogue matrix
The data management plan will describe how data collected is processed and made available when necessary to stakeholders towards the collection of inputs for the Strategic Agenda D81 and D82 This deliverable will be regularly updated as needed throughout the project execution
Publications
Author(s):
Becker, R., Chokoshvili, D., Comandé, G., Dove, E. S., Hall, A., Mitchell, C., Molnár-Gábor, F., Nicolàs, P., Tervo, S., & Thorogood, A.
Published in:
European Journal of Health Law, Issue 09290273, 2022, ISSN 0929-0273
Publisher:
Martinus Nijhoff Publishers
DOI:
10.1163/15718093-bja10094
Author(s):
Pujadas ER, Raisi-Estabragh Z, Szabo L, Morcillo CI, Campello VM, Martin-Isla C, Vago H, Merkely B, Harvey NC, Petersen SE, Lekadir K. Atrial fibrillation prediction by combining ECG markers and CMR radiomics. Sci Rep. 2022 Nov 7;12(1):18876. doi: 10.1038/s41598-022-21663-w. PMID: 36344532.
Published in:
Scientific Reports, Issue 12, 2022, ISSN 2045-2322
Publisher:
Nature Publishing Group
DOI:
10.1038/s41598-022-21663-w
Author(s):
Liliana Szabo, Zahra Raisi-Estabragh, Ahmed Salih, Celeste McCracken, Esmeralda Ruiz Pujadas, Polyxeni Gkontra, Mate Kiss, Pal Maurovich-Horvath, Hajnalka Vago, Bela Merkely, Aaron M. Lee, Karim Lekadir, Steffen E. Petersen.
Published in:
Frontiers in Cardiovascular Medicine, Issue 9, 2022, ISSN 2297-055X
Publisher:
Frontiers
DOI:
10.3389/fcvm.2022.1016032
Author(s):
Esmeralda Ruiz Pujadas, Zahra Raisi-Estabragh, Liliana Szabo, Celeste McCracken, Cristian Izquierdo Morcillo, Víctor M Campello, Carlos Martín-Isla, Angelica M Atehortua, Hajnalka Vago, Bela Merkely, Pal Maurovich-Horvat, Nicholas C Harvey, Stefan Neubauer, Steffen E Petersen, Karim Lekadir
Published in:
European Radiology, Issue 33, 2023, Page(s) 3488-3500, ISSN 1432-1084
Publisher:
SpringerLink
DOI:
10.1007/s00330-022-09323-z
Author(s):
Celia Alvarez-Romero, Alicia Martínez-García, Máximo Bernabeu-Wittel, Carlos Luis Parra-Calderón
Published in:
Health Research Policy and Systems, Issue 21, 2023, ISSN 1478-4505
Publisher:
BioMed Central
DOI:
10.1186/s12961-023-01026-1
Author(s):
Irene Kesisoglou; Shona Cosgrove; Pascal Derycke; Petronille Bogaert; Annika Jacobsen; Marco Roos; Anna Niemeyer; Alicia Martinez Garcia; Adrian Thorogood; Petr Holub; Irene Schluender; Salvador Capella-Gutierrez; Juan Gonzalez Garcia; Celia Alvarez Romero; Teresa D'Altri; Amy Curwin; Laura Portell Silva; Lidia López Cuesta
Published in:
2022
Publisher:
Zenodo
DOI:
10.5281/zenodo.6787119
Author(s):
Pascal Derycke, Irene Kesisoglou, Shona Cosgrove
Published in:
2022
Publisher:
HealthyCloud
DOI:
10.5281/zenodo.7038397
Author(s):
Schlünder, Irene; Mayrhofer, Michaela Th; Ene, Erdina
Published in:
2023
Publisher:
Zenodo
DOI:
10.5281/zenodo.8341642
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