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HealthyCloud – Health Research & Innovation Cloud

Descripción del proyecto

Facilitar un espacio europeo de datos sanitarios

El diseño de un portal de datos en la nube de investigación e innovación sanitaria (HRIC por sus siglas en inglés) que sea localizable, accesible, interoperable y reutilizable y que respete los requisitos jurídicos y éticos es uno de los objetivos clave de la Unión Europea. El proyecto financiado con fondos europeos HealthyCloud contribuirá a este campo mediante la redacción de una agenda estratégica que incluya una hoja de ruta del ecosistema HRIC lista para su implementación. El proyecto utilizará dos casos prácticos reales sobre cáncer y fibrilación auricular, y su trabajo dará lugar a una propuesta de ecosistema que construya y refuerce la confianza de los pacientes y ciudadanos en el uso de sus datos sanitarios con fines científicos.

Objetivo

The creation of a European Health Data Space is one of the six strategic priorities for the newly elected European Commission. The European Health Research and Innovation Cloud (HRIC) will be one of the future cornerstone pieces for this area. HealthyCloud will deliver a Strategic Agenda including a Ready-to-implement Roadmap for the HRIC ecosystem. The Strategic Agenda will incorporate the consolidated feedback of a broad range of stakeholders: the European Commission, the Member States and regional, national, European and international relevant initiatives. These agents will be invited to be part of the HealthyCloud’s Stakeholders’ Forum, designed to facilitate the dialogue among them and the Consortium, and to act as an umbrella to bring together similar efforts in specific domains.

HealthyCloud has been organized around four fundamental objectives that cover 1) interactions with stakeholders to ensure their voices are included as part of the Strategic Agenda; 2) the inclusion of Ethical, Legal and Societal aspects in the design of the future HRIC ecosystem; 3) the sustainable access, use and re-use of health-related data considering a progressive adoption of the FAIR principles; and 4) the technological solutions in terms of computational facilities and mechanisms to enable distributed health data analysis across Europe. The project is driven by two real-world use-cases (Cancer and Atrial Fibrillation) to ensure that propositions by domain-specific and technological experts are technically and ethically sound and legally compliant. The ultimate goal is to propose an ecosystem that builds and reinforces the trust of patients and citizens in the use of their health data for research.

HealthyCloud is a 30-month project that brings together 21 organizations with broad and yet complementary expertise, including 5 Research Infrastructures (ELIXIR, ECRIN, EATRIS, BBMRI and Euro-BioImaging) and 3 Joint Actions (InfAct, iPAAC and eHAction) related to health research.

Convocatoria de propuestas

H2020-SC1-BHC-2018-2020

Consulte otros proyectos de esta convocatoria

Convocatoria de subcontratación

H2020-SC1-2020-Single-Stage-RTD

Régimen de financiación

CSA - Coordination and support action

Coordinador

INSTITUTO ARAGONES DE CIENCIAS DE LA SALUD
Aportación neta de la UEn
€ 287 500,00
Dirección
AVENIDA SAN JUAN BOSCO 13
50009 ZARAGOZA
España

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Región
Noreste Aragón Zaragoza
Tipo de actividad
Research Organisations
Enlaces
Coste total
€ 287 500,00

Participantes (25)