Participatory Approaches to a New Ethical and Legal Framework for ICT

Project Information

PANELFIT

Grant agreement ID: 788039

DOI 10.3030/788039

Project closed

EC signature date 9 October 2018

Start date 1 November 2018

End date 30 April 2022

Funded under

• Develop the governance for the advancement of responsible research and innovation by all stakeholders, which is sensitive to society needs and demands and promote an ethics framework for research and innovation

Total cost € 2 798 031,25

EU contribution € 2 798 031,25

Coordinated by

UNIVERSIDAD DEL PAIS VASCO/ EUSKAL HERRIKO UNIBERTSITATEA
Spain

Deliverables

Documents, reports (19)

Handbook for Journalists
Issues and gap analysis on data commercialisation in the context of ICT research and innovation

Issues and gap analysis and Section of the Guidelines devoted to data commercialisation in the context of ICT research and innovation

Guidelines on Data Protection ELI in ICT Research and Innovation
Code of Conduct for Responsible Research and Innovation
JCR indexed journal publishing the papers corresponding to the security and cybersecurity workshop
JCR indexed journal publishing the papers corresponding to the workshop on commercialisation
Online version of The Guidelines Produced and working

D59 Online version of The Guidelines Produced and working UPVEHU DBTAn online version of The Guidelines will serve to make the outcome easier to use for endusers and stakeholders It will be include cross references and links Short videos will help end users gain basic knowledge about the main issues in a simple way

Dissemination, communication and exploitation plan

Dissemination communication and exploitation plan

Report on the surveys, training courses and webinars

Report on the surveys training courses and webinars

JCR indexed journal publishing the papers corresponding to the workshop on data protection ethical issues
Citizens Info Pack
Journalistic publications by OBCT, VoxEurop, and other media outlets engaged in the project

Journalistic publications by OBCT VoxEurop and other media outlets engaged in the project

Management guidelines
Report on the Governance of ICT data protection ELI.

Report on the Governance of ICT data protection ELI

Report on the Implementation of the Communication Strategy
JCR indexed journal publishing the papers corresponding to the Informed Consent workshop
Issues and gaps analysis on informed consent in the context in ICT research and Innovation

Issues and gaps analysis on the regulation and Section of Guidelines related to informed consent in the context of ICT research and innovation

Critical Analysis on the ICT Data Protection Regulatory Framework
Issues and gap analysis security and cybersecurity ELI in the context of ICT research and innovation

Section of the Guidelines devoted to security and cybersecurity ELI in the context of ICT research and innovation

Open Research Data Pilot (1)

Data management plan

Websites, patent fillings, videos etc. (1)

Website and social media tools

Publications

Peer reviewed articles (40)

Ownership Of Databases: Personal Data Protection And Intellectual Property Rights On Databases

Author(s): Gemma Minero Alejandre
Published in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 733 – 756, ISSN 1875-8371
Publisher: Wolters Kluwer
DOI: 10.21248/gups.64578

Immunity passports, fundamental rights and public health hazards: a reply to Brown et al

Author(s): Iñigo de Miguel Beriain, Jon Rueda
Published in: Journal of Medical Ethics, Issue 46/10, 2020, Page(s) 660-661, ISSN 0306-6800
Publisher: BMJ Publishing Group
DOI: 10.1136/medethics-2020-106814

Questioning the EU proposal for an Artificial Intelligence Act: The need for prohibitions and a stricter approach to biometric surveillance

Author(s): Irena Barkane
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211524

Between formality and informality: A critical study of the integration of drones within the Neuchâtel police force

Author(s): Silvana Pedrozo, Francisco Klauser
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211533

Accountability by design in technology research

Author(s): Ben Wagner
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105398, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105398

Building up the “Accountable Ulysses” model. The impact of GDPR and national implementations, ethics, and health-data research: Comparative remarks

Author(s): Denise Amram
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105413, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105413

Data protection, scientific research, and the role of information

Author(s): Rossana Ducato
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105412, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105412

The European PNR Directive as an instance of pre-emptive, risk-based algorithmic security and its implications for the regulatory framework

Author(s): Elisa Orrù
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211531

The Legal Regulation of Digital Wealth: Commerce, Ownership and Inheritance of Data

Author(s): José Antonio Castillo Parrilla
Published in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 807 – 830, ISSN 1875-8371
Publisher: Wolters Kluwer
DOI: 10.21248/gups.64581

The genomic data deficit: On the need to inform research subjects of the informational content of their genomic sequence data in consent for genomic research

Author(s): Dara Hallinan
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105427, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105427

The Quality of Life: Protecting Non-personal Interests and Non-personal Data in the Age of Big Data

Author(s): Bart Van Der Sloot
Published in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 757 – 784, ISSN 1875-8371
Publisher: Wolters Kluwer
DOI: 10.21248/gups.64579

Culling the FLoC: Market forces, regulatory regimes and Google’s (mis)steps on the path away from targeted advertising

Author(s): David Eliot, David Murakami Wood
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211535

Responsible application of artificial intelligence to surveillance: What prospects?

Author(s): Roger Clarke
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211532

A Consumer Law Perspective on the Commercialization of Data

Author(s): Mateja Durovic, Franciszek Lech
Published in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 701 – 732, ISSN 1875-8371
Publisher: Wolters Kluwer
DOI: 10.21248/gups.64577

Emotional AI: Legal and ethical challenges

Author(s): Thomas Gremsl, Elisabeth Hödl
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211529

Valoración algorítmica ante los derechos humanos y el Reglamento General de Protección de Datos: el caso SyRI

Author(s): Guillermo Lazcoz Moratinos, José Antonio Castillo Parrilla
Published in: Revista Chilena de Derecho y Tecnología, Issue 9/1, 2020, Page(s) 207, ISSN 0719-2584
Publisher: Universidad de Chile
DOI: 10.5354/0719-2584.2020.56843

The Geneva Statement on Heritable Human Genome Editing: A Criticism

Author(s): Íñigo de Miguel Beriain
Published in: Trends in Biotechnology, 2020, ISSN 0167-7799
Publisher: Elsevier BV
DOI: 10.1016/j.tibtech.2020.11.004

‘Digital pills’ for mental diseases: an ethical and social analysis of the issues behind the concept

Author(s): Iñigo de Miguel Beriain, Marina Morla González
Published in: Journal of Law and the Biosciences, 2020, ISSN 2053-9711
Publisher: Oxford University Press
DOI: 10.1093/jlb/lsaa040

The sensitive nature of facial recognition: Tensions between the Swedish police and regulatory authorities

Author(s): Marie Eneman, Jan Ljungberg, Elena Raviola, Bertil Rolandsson
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211538

Information privacy, impact assessment, and the place of ethics

Author(s): Charles D. Raab
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105404, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105404

What Can We Do with the Data of Deceased People? A Normative Proposal

Author(s): Iñigo de Miguel Beriain, Aliuska Duardo-Sánchez, José Castillo Parrilla
Published in: European Review of Private Law, Issue Volume 29, Issue 5, 2021, Page(s) 785 – 806, ISSN 1875-8371
Publisher: Wolters Kluwer
DOI: 10.21248/gups.64580

Gene editing and disabled people: a response to Felicity Boardman

Author(s): Iñigo de Miguel Beriain
Published in: Journal of Community Genetics, Issue 11/3, 2020, Page(s) 241-243, ISSN 1868-310X
Publisher: Springer Verlag
DOI: 10.1007/s12687-020-00460-w

Introduction to the Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies

Author(s): Johann Čas,Paul De Hert, Maria Graziac Porcedda, Charles D. Raab
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-229006

Automated decision-making in the EU Member States: The right to explanation and other “suitable safeguards” in the national legislations

Author(s): Gianclaudio Malgieri
Published in: Computer Law & Security Review, Issue 35/5, 2019, Page(s) 105327, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2019.05.002

Should we have a right to refuse diagnostics and treatment planning by artificial intelligence?

Author(s): Iñigo de Miguel Beriain
Published in: Medicine, Health Care and Philosophy, 2020, ISSN 1386-7423
Publisher: Kluwer Academic Publishers
DOI: 10.1007/s11019-020-09939-2

Data protection and research: A vital challenge in the era of COVID-19 pandemic

Author(s): Gianclaudio Malgieri
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105431, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105431

Transparency by design in data-informed research: A collection of information design patterns

Author(s): Arianna Rossi, Gabriele Lenzini
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105402, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105402

It's all linked: How communication to the public affects internet architecture

Author(s): Giancarlo Frosio
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105410, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105410

Vulnerable data subjects

Author(s): Gianclaudio Malgieri, Jędrzej Niklas
Published in: Computer Law & Security Review, Issue 37, 2020, Page(s) 105415, ISSN 0267-3649
Publisher: Pergamon Press Ltd.
DOI: 10.1016/j.clsr.2020.105415

WHAT CAN WE EXPECT FROM THE EU LEGAL FRAMEWORK IN A PANDEMIC OUTBREAK?

Author(s): ñigo de Miguel, Elena Atienza-Macías
Published in: BioLaw Journal, 2020, ISSN 2284-4503
Publisher: University of Trento
DOI: 10.15168/2284-4503-20201s

La inteligencia artificial en el proceso penal español: un analisis de su admisibilidad sobre la base de los derechos fundamentales implicados

Author(s): Iñigo De Miguel Beriain, Miren Josune Pérez Estrada
Published in: Revista de Derecho de la UNED (RDUNED), Issue 25, 2020, Page(s) 531, ISSN 2255-3436
Publisher: UNED
DOI: 10.5944/rduned.25.2019.27013

Medicina personalizada, algoritmos predictivos y utilización de sistemas de decisión automatizados en asistencia sanitaria. Problemas éticos

Author(s): Iñigo de Miguel Beriain
Published in: DILEMATA - International Journal of Applied Ethics, Issue Year 11 - No 30 (May 2019), 2019, ISSN 1989-7022
Publisher: International Journal of Applied Ethics

An EU comparative analysis of the regulation of clinical trials supervisory bodies in the aftermath of Regulation 536/2014

Author(s): Iñigo de Miguel Beriain I., Timo, M., Chortara T., Duardo-Sánchez, A., Feeney O., Felzmann, H., Fernández de Uzquiano, E., Lievevrouw, E., Marelli, L., Mattsson, T., Pulice, E., Lúcia Raposo, V., Robienski, J., Penasa, S., Van Hoyweghen, I., Rothmar HJ.,
Published in: European Public Law, 2020, ISSN 1354-3725
Publisher: Kluwer Law International

Health Information Counselors Help Avoid Automatized Decisions in Health Care

Author(s): Iñigo de Miguel Beriain
Published in: Academic Medicine, Issue 94/5, 2019, Page(s) 610, ISSN 1040-2446
Publisher: Lippincott Williams & Wilkins Ltd.
DOI: 10.1097/acm.0000000000002644

Visual and biometric surveillance in the EU. Saying ‘no’ to mass surveillance practices?

Author(s): Paul De Hert, Georgiosc Bouchagiar
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211525

We should not vaccinate the young to protect the old: a response to Giubilini, Savulescu, and Wilkinson

Author(s): Iñigo de Miguel Beriain
Published in: Journal of Law and the Biosciences, Issue 8/1, 2021, ISSN 2053-9711
Publisher: Oxford University Press
DOI: 10.1093/jlb/lsab015

Vaccination certificates, immunity passports, and test-based travel licences: Ethical, legal, and public health issues

Author(s): Íñigo de Miguel Beriain, Jon Rueda
Published in: Travel Medicine and Infectious Disease, Issue 42, 2021, Page(s) 102079, ISSN 1477-8939
Publisher: Elsevier BV
DOI: 10.1016/j.tmaid.2021.102079

Policing the smart home: The internet of things as ‘invisible witnesses’

Author(s): Lachlan Urquhart, Diana Miranda, Lena Podoletz,
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211541

Power in the modern ‘surveillance society’: From theory to methodology

Author(s): Catharina Rudschies
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-211536

Machine learning in the EU health care context: exploring the ethical, legal and social issues

Author(s): Iñigo de Miguel, Begoña Sanz, Guillermo Lazcoz
Published in: Information, Communication & Society, Issue 23/8, 2020, Page(s) 1139-1153, ISSN 1369-118X
Publisher: Routledge
DOI: 10.1080/1369118x.2020.1719185

Non-peer reviewed articles (1)

An essay on complex problems and simple solutions: Techno-fallacies of the information age

Author(s): Gary T. Marx
Published in: Information Polity - Special Issue: Questioning Modern Surveillance Technologies: Ethical and Legal Challenges of Emerging Information and Communication Technologies, Issue Volume 27, Issue No 2, 2022, ISSN 1570-1255
Publisher: IOS Press
DOI: 10.3233/ip-229007

Book chapters (1)

A discussion on ethical cybersecurity issues in digital service chains

Author(s): Tronnier Frédéric, Pape Sebastian, Löbner Sascha, Rannenberg Kai
Published in: Cybersecurity of Digital Service Chains, Issue Volume 13300, 2022, Page(s) 222-256, ISBN 978-3-031-04036-8
Publisher: Springer
DOI: 10.1007/978-3-031-04036-8_10

Conference proceedings (2)

The concept of fairness in the GDPR: a linguistic and contextual interpretation

Author(s): Gianclaudio Malgieri
Published in: Proceedings of the 2020 Conference on Fairness, Accountability, and Transparency, 2020
Publisher: Association for Computing Machinery
DOI: 10.1145/3351095.3372868

Multi-layered explanations from algorithmic impact assessments in the GDPR

Author(s): Margot E. Kaminski, Gianclaudio Malgieri
Published in: Proceedings of the 2020 Conference on Fairness, Accountability, and Transparency, 2020, Page(s) 68-79, ISBN 9781450369367
Publisher: ACM
DOI: 10.1145/3351095.3372875

Other (2)

Creating a citizens' information pack on ethical and legal issues around ICTs: what should be included?

Author(s): Asine, Janice; Baibarac-Duignan, Coralie; Broglio, Elisabetta; Castañeda, Alexandra; Feord, Helen; Freyburg, Linda; Leppée, Marcel; Matheus, Andreas; Camara Oliveira, Marta; Pavlakis, Christoforos; Peira, Jaume; Soacha, Karen; Thuermer, Gefion; Vohland, Katrin; Wagenknecht, Katherin; Woods, Tim; Zourou, Katerina; Caruso, Federico; Duerinckx, Annelies; Klimczuk, Andrzej; Sterken, Mieke; Berti Sum
Published in: 2020
Publisher: Museum für Naturkunde Berlin
DOI: 10.5281/zenodo.3967280

Towards a Better Understanding of Identification, Pseudonymization, and Anonymization

Author(s): Bud P. Bruegger, ULD
Published in: 2021, Page(s) 1-116
Publisher: Unabhängiges Landeszentrum für Datenschutz, ULD