Resultado final
Report identifying compliance challenges, gaps and failures in global ethical adherence through analysis and engagement with funders and industry
National and international compliance toolsDirectory of current compliance tools used both nationally and internationally in research ethics
Sustainability roadmap and implementation strategyMap of activities, which will go beyond TRUST, but are needed to improve adherence to high ethical standards around the world to include report on engagement activities DELIVERABLE EXTENDED TO MONTH 39. IN MONTH 34 THE GLOBAL CODE WAS ADOPTED BY THE EUROPEAN COMMISSION. THIS WILL ENSURE SUSTAINABILITY. HOWEVER, THE SUSTAINABILITY OF THE CODE COULD BE ENHANCED FURTHER IF OTHER FUNDERS WERE GOING TO ADOPT IT. ADDITIONAL DISSEMINATION EFFORTS MIGHT LEAD TO THIS RESULT. IF SO, THE ADDITIONAL ROADS TO SUSTAINABILITY NEED TO BE DESCRIBED IN THIS DELIVERABLE. (ALL ADDITIONAL PERSON MONTHS ARE IN WP2 DISSEMINATION, NOT IN SUSTAINABILITY. WRITING UP NEW SUCCESSES CAN BE DONE WITHIN EXISTING PERSON MONTH BUDGETS).
BrochureBrochure developed in collaboration with partners
Proposals for strategic approaches to compliance in low and middle income countriesBased on Deliverables 15 and 16 report summarizing proposals for strategic approaches to compliance with research ethics in low and middle income countries
Springer Briefs BookShort, hot topics, open access Springer monograph. TO CAPTURE THE IMPACT OF THE GLOBAL CODE (THE MAIN TOPIC OF THIS BOOK) THE NEW DELIVERABLE DEADLINE IS MONTH 39 (SUBMISSION OF FINISHED MANUSCRIPT TO SPRINGER). ETHICS CODES WITH POLICY IMPACT ARE MUCH MORE INTERESTING TO READERS AND THIS IS THEREFORE A VALUABLE ADDITION. (ALL ADDITIONAL PERSON MONTHS ARE IN WP2 DISSEMINATION, NOT IN SUSTAINABILITY. WRITING NEW SUCCESSES INTO THE BOOK CAN BE DONE WITHIN EXISTING PERSON MONTH BUDGETS).
Report on paradigmatic case studiesThe deliverable is based on Task 1.1 In-house case studies (Ferci) Task 1.2 Case study gap analysis (ACF) Task 1.3 Bottom-up case studies (Inserm)
Industry Platform ReportReport on the Industry activities, to include: A. Provision of case studies for WP1 B. Organisation of Industry (and 1st Tools) Workshop for feedback on tools C. Industry input on deliverables. D. Examples of self-regulation mechanisms for WP4 E. Suggestions for ethics committee policy briefs
Report on Generic Risks of Exporting Non-Ethical PracticesBuilding on matrix included in proposal and using case studies from Deliverable 1, identify personal, institutional and community-based risks independent of discipline (generic risks) through themed and conceptual analysis.
Policy briefs for ethics committeesBuilding on compliance gaps from WP4, draft and disseminate policy briefs for ethics committees.
Funder Platform ReportReport on Funder activities, to include: A. Funder inventory B. Funder Workshop for feedback on tools C. Suggestions for ethics committee policy briefs and tools
1st Engagement ReportReport summarizing engagement and dissemination activities up to M19.
2nd Engagement ReportReport summarizing engagement and dissemination activities from M19. THIS REPORT WILL INCLUDE DESCRIPTIONS OF ALL ACTIVITIES I to L LISTED UNDER DISSEMINATION IN THE WP 2 DESCRIPTION. THESE WERE ADDED FOR THE JULY 2018 AMENDMENT TO THE GA.
Final Global Code of ConductReport with Global Code of Conduct including input from engagement panel and advisory board.
"Special Symposium in the ""Cambridge Quarterly of Healthcare Ethics"First planned peer-reviewed international journal output in Cambridge Quarterly of Healthcare Ethics.
Matrix mapping case studies onto risksBuild draft matrix for checking by all case study leads (SASI, PHDA, ACF) to obtain input from local populations and test generic matrix in 3 disciplines (medicine PHDA, social science UCT, anthropology SASI).
FRC-online tool
Website and TwitterWebsite dedicated to the project with internal and external pages hosted for the duration of the project. Twitter account YouTube Channel
Publicaciones
Autores:
FRANCOIS BOMPART
Publicado en:
Cambridge Quarterly of Healthcare Ethics, Edición 28/1, 2019, Página(s) 134-143, ISSN 0963-1801
Editor:
Cambridge University Press
DOI:
10.1017/s0963180118000476
Autores:
KLAUS M. LEISINGER, KATE CHATFIELD
Publicado en:
Cambridge Quarterly of Healthcare Ethics, Edición 28/1, 2019, Página(s) 153-164, ISSN 0963-1801
Editor:
Cambridge University Press
DOI:
10.1017/s096318011800049x
Autores:
ARIELLA KELMAN, ANNA KANG, BRIAN CRAWFORD
Publicado en:
Cambridge Quarterly of Healthcare Ethics, Edición 28/1, 2019, Página(s) 124-133, ISSN 0963-1801
Editor:
Cambridge University Press
DOI:
10.1017/s0963180118000464
Autores:
DORIS SCHROEDER, JULIE COOK
Publicado en:
Cambridge Quarterly of Healthcare Ethics, Edición 28/1, 2019, Página(s) 121-123, ISSN 0963-1801
Editor:
Cambridge University Press
DOI:
10.1017/s0963180118000452
Autores:
Kate Chatfield, Bahare Salehi, Javad Sharifi-Rad, Leila Afshar
Publicado en:
Evidence-Based Complementary and Alternative Medicine, Edición 2018, 2018, Página(s) 1-7, ISSN 1741-427X
Editor:
Oxford University Press
DOI:
10.1155/2018/1903629
Autores:
Schroeder, D., Cook, J., Hirsch, F., Fenet, S., Muthuswamy, V. (Eds.)
Publicado en:
Ethics Dumping - Case Studies from North-South Research Collaborations, 2018, ISBN 978-3-319-64731-9
Editor:
Springer
DOI:
10.1007/978-3-319-64731-9
Autores:
Schroeder, D., Chatfield, K., Singh, M., Chennells, R., Herissone-Kelly, P.
Publicado en:
Springer Briefs in Research and Innovation Governance, 2019, ISBN 978-3-030-15745-6
Editor:
Springer
Autores:
Julie Cook, Kate Chatfield, Doris Schroeder
Publicado en:
Ethics and Integrity in Health and Life Sciences Research, Edición 4, 2018, Página(s) 11-31, ISBN 978-1-78743-572-8
Editor:
Emerald Publishing Limited
DOI:
10.1108/s2398-601820180000004002
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